Word spread quickly.
The Leonard Florence Center for Living (LFCL), the only urban model skilled nursing Green House in the world caring for individuals with ALS – was opening a second home for individuals living with ALS.
Within days, the new Dapper McDonald ALS Residence was filled with a diverse mix of residents in terms of ages, occupations and geographic locations. These residents, many of whom are completely immobilized, are now able to live more independently by controlling the lights, turning on the TV, opening doors and raising window shades – all through the use of their eyes.
The 8th Annual ALS & MS Walk for Living, a fundraiser to support these neurological specialty residences and its residents, will take place on Sunday, Sept. 25, 10 a.m. at 165 Captains Row on Admirals Hill. The Dapper McDonald ALS Residence marks the third neurological specialty residence within the award-winning Leonard Florence Center. The Steve Saling ALS Residence and the Slifka MS Residence opened in 2010. The revolutionary technology, dedicated support staff and nurturing home environment enable the residents to live as independently as possible.
“This year’s Walk for Living will honor Bill and Sharon Stein; major benefactors of our ALS Residences,” said Barry Berman, CEO of the Chelsea Jewish Foundation. “Their extreme generosity has changed the lives of our pALS.”
He added, “We also wish to thank our local communities, businesses, residents and their families. Clearly, their support of the Walk, year after year, is truly invaluable.”
Beloved radio personality Matt Siegel, host of “Matty in the Morning” on KISS 108 will once again act as emcee and kick-off the two-mile walk. Major corporate sponsors include Donoghue, Barrett & Singal, Lundgren Management (AHOA), M&T Bank, Kayem Foods Incorporated, ShiftGear, CliftonLarsonAllen LLP, A-1 Lighting Service Company, Genzyme and Eastern Salt.
Independent Newspaper Group is the media sponsor.
Immediately following the walk, there will be a BBQ hosted by Chili’s, doughnuts provided by Dunkin Donuts, face painting, live dance performances, a petting zoo, a photo booth and a raffle. There is a $10 donation fee to participate in the Walk, which includes a Walk for Living tee shirt, the BBQ and all the activities. Registration begins at 9 a.m. on Sunday, September 25; the Walk begins at 10 a.m.
The Walk for Living is one of the few walks that are dog-friendly.
Without a doubt, the extraordinary ALS and MS residents reflect the very essence of the Walk – and the Center. Ten years after his ALS diagnosis, Patrick O’Brien, produced and directed TransFatty Lives, which won the coveted “Top Audience Award” at the prestigious Tribeca and Milano Film Festivals, among other honors. Steve Saling, an architect who helped design the Center, was told to he had two to five years to live at the time he was diagnosed with ALS in 2008; today Steve travels throughout the country, giving presentations and speeches through a voice activated computer. Bonnie Berthiaume, the first multiple sclerosis resident to move into the Leonard Florence Center, noted that the LFCL changed her life by giving her the freedom to attend Red Sox games, the theatre and weekly outings.
Tony Epifani, 47, a World Cup Soccer player from Syracuse, whose wife, son and daughter reside in New York, was confined to one room day after day, ultimately feeling lost and disconnected from the world. Now, after moving to the Dapper McDonald Residence, he is fully ensconced in the day-to-day activities at the Center. Together, these ALS & MS residents demonstrate how they live life to the very fullest every single day.
“I am excited to emcee the 8th annual ALS & MS Walk for Living,” said Matt Siegel. “The Leonard Florence Center for Living residents are an inspiration to us all, with their courage, determination, humor and zest for living.”
Support the ALS & MS Walk for Living by sponsoring or joining a team, or making a much-needed donation at www.walkforliving.org. For more information, call Joelle Smith at 617-409-8973 or email [email protected].